Christian Rory Alan Carnahan. He was born November 6, 2018 via cesarean section. He was the first born grandchild and nephew on both sides of the family. He was an incredibly loved and cherished little boy. Everyone who came in contact with this incredible baby fell in love with him.
Christian was a very special baby, even before birth. He was diagnosed with a heart defect in utero, transversion of the great arteries. He was also diagnosed with neurological issues after ultrasounds and a fetal MRI. Despite all of these concerns, we decided to continue on as normal with the hopes that our son would need minimal medical intervention after birth. He flourished in utero until our c section at 38 weeks. Even after a rough day of birth, Christian fought and thrived.
Two days later, our worst fears were confirmed. Our precious little son had only days or weeks to live because he had inherited a rare congenital form of muscular dystrophy, Walker-Warburg Syndrome.
Christian Rory Alan spent the entirety of his days on this earth in the NICU at Winnie Palmer Hospital where he received around the clock care from an incredibly talented and caring group of doctors and nurses.
On December 5, just 29 days after he’d been born, Christian’s body began to fail. We said goodbye to our little man that day while he was surrounded by the people who knew and loved him best. His is incredibly loved and incredibly missed.
Christian is my inspiration for this blog. I started writing while I was pregnant with him and struggling with all the scary doctors appointments. I then began writing regularly after his birth as we struggled to deal with the reality of his situation. I continue to write in honor of him. I continue to fight on even in the midst of grief because of him. I want this blog to be a legacy because of a little boy named Christian who fought so hard in his short life and who taught me what real love and sacrifice means.
If you’d like to read Christian’s full story, click here.